THE DIADIC END-OF-PROJECT CONFERENCE (EAPC Pre-Congress event) on Improving quality of life and wellbeing for patients with a serious illness AND their carers.

View the Conference Program

The DIAdIC project, along with the EAPC Reference Groups for Family Carers and Public Health and Palliative Care, is organizing a conference on the theme of patient- and family-oriented care on Wednesday, May 15, prior to the 13th World Research Congress of the European Association for Palliative Care (EAPC) in Barcelona.

Date: Wednesday, 15 May 2024, 09.00-17.45 (has already taken place)
Venue: Aula Magna (160 places), Historic Building, first floor, University of Barcelona, Gran Via de les Corts Catalanes, 585, 08007 Barcelona

Organisation committee:

  • DIAdIC Coordination Team
  • EAPC: Cathy Payne

Scientific committee:

  • DIAdIC Coordination Team
  • Peter Hudson
  • Clare Gardiner & Nick Odom (EAPC Reference Group for Family Carers)

Aims of the conference:

1) To stimulate a paradigm shift in policymakers, professional healthcare providers and other stakeholders towards dyadic care (addressing both the patient and the caregiver as a unit of care);

2) To inform about the outputs and results of the DIAdIC project;

3) To collectively create strategies to advance the implementation of dyadic approaches to care.

Target audience:

  • European and national professional bodies
  • Researchers
  • Policymakers (local, national and transnational)
  • Healthcare professionals
  • Representatives from patient/family carer advocacy groups
  • Health insurance companies
  • Civil society representatives

Program:

9:00 AM REGISTRATION
10:00 AM Welcome

Speaker: Jesus Gonzalez-Barboteo (Catalan Institute of Oncology, Consultant Palliative Care Physician. Palliative Care Department)

10:15 – 11:15 AM Setting the keynote

Setting the keynote

– Joachim Cohen – DIAdIC project Coordinator, (20 minutes): Introduction: what lies ahead: describing the care needs and potential of patients with serious illness and their carers, and presentation of the conference.

– Stecy Yghemonos – Director of EuroCarers (20 minutes): What are the challenges we would like to see addressed? What do we see as solutions?

11:15 AM – 1:00 PM The dyadic philosophy of care

Clare Gardiner (25 minutes): Family caregiving in palliative and end of life care: challenges and policy solutions

– Nick Odom (25min): State of the Science in Interventions for Serious Illness Family Carers: How far have we come? Where do we go next?

– Laurel Northouse (25 minutes): FOCUS – a dyadic program of care: history, evidence, challenges, and lessons learned over 20 years

– Katherine Bristowe (20 minutes): But I don’t have a family carer: risks, limitations and solutions in dyadic approaches of care

-Q&A

1:00 – 2:00 PM LUNCH
2:00 – 3:15 PM Outputs and findings from the DIAdIC project

– Aline De Vleminck (20 minutes): Comparing a nurse-led face to face and a self-administered web-based dyadic intervention with standard care: development and results of the FOCUS+ and iFOCUS programs

– Suzanne Guerin (20 minutes): understanding what works, how and why in FOCUS and iFOCUS

– Peter May (15 minutes): The costs and benefits FOCUS and iFOCUS: results of the economic evaluation

– Peter Hudson (10min): The effectiveness-implementation trial of a dyadic digital health intervention in Australia (FOCUSau)

– Q&A

3.15-3.30 PM COFFEE BREAK
3.30-4.55 PM The perspective of the patient-carer dyad and the healthcare professional

– Presentation by a patient and/or caregiver (20 min): The meaning and impact of the FOCUS+ and iFOCUS interventions

– Kevin Brazil (20 minutes): The meaning and impact of psychoeducation dyadic programs to nurses who delivered the FOCUS+ program

– Ulrik Sørensen Schmidt (20 minutes): The implementation of a psychoeducation dyadic program in practice: a case example

– Vincent Van Goethem (20 minutes): Promise and pitfalls of eHealth and mhealth as methods to deliver psychoeducational support to patients and their carers (discussing findings from DIAdIC and other programs)

– Q&A

4:55 – 5:30 PM Panel discussion

Translating knowledge into societal change: panel will discuss different elements that were presented during the day and address a number of questions (will be provided ahead of the discussion) regarding implementation, policy, etc.

Moderator: Philip Larkin

Panel: Clare Gardiner, Laurel Northouse, Cathy Payne, Peter Hudson, Jesus Gonzalez-Barboteo

5:30-5:45PM CLOSING

*Please address your questions to: Joachim COHEN Joachim.Cohen@vub.be;